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Amy E. Harth, PhD's avatar

Whenever these conversations come up, I tend to say nothing because unlike influencers I don’t think my anecdotal experience is something to broadcast to the world, and I hold highly nuanced views on the subject, which tend not to work for either the influencer or the anti-wellness industry groups. I’m definitely on board with how the wellness industry profits off anti-fatness and diet culture. I teach about this myself. I also think this is an area where it’s more challenging to explain where, how and why they are wrong.

My experience is being diagnosed with Irritable Bowel Syndrome at age 7. I had chronic, awful stomach aches as child and I had extensive tests (upper and lower GI, ultrasounds and more). In 1989, the best the doctor could do was tell my mother that I would need to learn to live with it, which I did for many years. Fast forward to 1999, I got my gallbladder removed, which tends to make some people need to use the bathroom more quickly after eating. My turn around time was already 15 minutes so I didn’t notice much difference. In 2007, I couldn’t eat anything without severe pain and spending hours in the bathroom. I spent all day in bed for a month. I couldn’t go to work or do much of anything. It was awful, debilitating and scary.

What makes what helped hard to explain is how language has been co-opted by the wellness industry. I didn’t do an elimination diet, and I wouldn’t recommend one to anyone. What I did do was find a book for people with IBS with a list of foods for when you can’t eat anything. I ate only the foods on that list for a month because before that anything I ate was making me miserable. This wasn’t an elimination diet but a reintroduction of food “diet.” It definitely wasn’t a diet because I didn’t care how much I ate or about anything except not feeling awful after eating and lots of the foods on the list are demonized by the diet industry.

Once I got back to feeling better, then it was about reintroducing other foods one at a time to see what I could tolerate. This is where the language of food sensitivity particularly was useful for me. There are only 3 foods that I found really elicited a violent reaction. Everything else was either fine or something that I needed to be thoughtfully about what else I ate with it and how much. Not portion control but just so that I had enough other food that wasn’t an issue to “cover it.” Because I don’t want to mention specific foods, let’s pretend people often eat wood chips and rocks. Sometimes separately, sometimes together. For me, wood chips feel great. But rocks hurt if I eat them by themselves. If I have some wood chips with some rocks mixed in, I’m usually fine. I can have a big bowl and everything is great. This is how I used food sensitivity to explain to people who were cooking for me or picking a restaurant, what I eat. It’s still complex because if I feel really stressed, then I might feel like any rocks aren’t a good idea for lunch but be fine with having some later for dinner. These should be relatable concepts but when it’s tied to a medical condition I’ve found people are very reluctant to believe one’s understanding of their own bodies (especially fat people’s) unless they’re trying to capitalize off of that concern. So a lot of people just think I’m weird and picky and making it up whereas others want to sell me a magic fix it.

As someone dedicated to fat liberation, I’m not sticking up for the wellness industry or any of their destructive practices like elimination diets that are embraced by the medical establishment too. I just want people to know that when we talk about what it means to actually have a food sensitivity or medical issue sometimes the only people who are willing to listen are other people with these experiences. And some of those people are selling things that are part of this industry. Who or what do you turn to when you can’t eat anything without pain and your doctor says to learn to live with it? I feel lucky that I found a book that was helpful to me and that I could ignore the wellness industry stuff in that book. I rarely recommend anything to people in my situation and if I do (3 times in my life), it’s been to people really struggling who I could have a candid conversation with about these pitfalls and more.

I’ve written this long comment because I think people in the messy middle, which may be more than a few, are left out. General statements validating that we exist are important. But if we only focus on the scams and the successful medical solutions, we’ll miss the people who have been failed by both.

As a fat liberationist, I want to be able to see this as totally black and white. The wellness industry IS preying on people’s suffering (including too many medical establishment folks). It’s just not the whole story, which is - when they are the only ones offering solutions, and we must cobble together our own methods of survival. Opting out entirely may not be an option and that is another way that anti-fatness fails us.

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Wendy's avatar

So, you are saying that I *should* worry about heavy metal toxicity because I let my toddler get a job at that smelting factory (all the chimneysweep jobs were taken, alas)? Wow, really feeling judged for my parenting choices here today.

Honestly, you've covered this already, but I still feel like the worst thing in this whole space is that people still believe the sugar=hyperactive, behavior issues myth and make fun food experiences so fraught and weird.

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